You read that right, my scoliosis is reversing. Since childhood I have been told and read that my twisted spine was going to get worse every year and while it has slowly progressed in a bad way and I do experience chronic pain, it hasn’t been as bad as they all said it would without surgery. That being said, there is very little hope or positivity in the journey of my scoliosis.
A few years ago I started having a regular premonition that my spine was magically going to get better in 2018. While that magic has been me wearing a specialized exercise suit to make that a reality, my scoliosis has been getting better! Instead of my spine getting 1-2 degrees worse per year as the statistics say my spine should get, my spine reversed 6 degrees during six months last year.
Earlier this year I started using one of the latest innovations in scoliosis treatment, a Scoliosis Activity Suit. I had been researching this suit for a while and finally decided to try it out based on the testimonials of other people with scoliosis who were wearing it.
This stand alone treatment checked all my boxes; it wasn’t spinal fusion surgery or drugs but a simple device that one wears when walking or doing anything active. What does it feel like to train your spine to untwist? It feels like a lot of things.
Number one, it feels good and it feels like hope. When I first walked in it, I could tell that it was working parts of my core that would not normally get activated from any other activity that I do. Walking felt easier albeit awkward at first.
Next, it feels like a little bit of work. While walking may be easy enough, you have to ease in to how much time you spend active in the suit because it literally is like wearing an exercise machine for your spine. I quickly learned that if I wore it too long my deep spinal and ribcage muscles would be very uncomfortable or sore for a few days after. If I wore it just enough I would experience an overall decrease in pain, improved range of motion in my spine, and better sleep.
The Scoliosis Activity Suit has been monumental this year in changing my spinal health. Although the suit has given me the most dramatic results, I would put my experience with the suit in a similar category as learning pilates and yoga; it has lifted and empowered me to move and take control of my health. Plus, I can also take it anywhere with me.
The very idea that all I have to do is put it on and go for a walk to not only experience relief in the moment but also for hours and days afterward is very positive for my mental health as well. I don’t have to wear it all day but the more I progress with it, the more my spine is being trained to unscrew from its very rotated position.
Other challenges that have come up are similar to maintaining any exercise routine. Sometimes I find myself making excuses or skipping days so I don’t have to wear it. I’ve gone through phases this year where my use was very irregular (1-3 times per week) and I still experienced some benefits.
Another honest challenge is that the suit makes me feel vulnerable in public. Like I am walking around with my disabilities showing. Then I remember that I am walking with ease, I get a little taller, and I don’t care so much what people see. Walking slow, in pain, or with a limp is much worse.
I will say that the suit does sometimes make me feel athletic. I have come to find it a most useful tool during hiking, walking, household chores, and extended activities that have you moving on your legs. It is definitely not a sitting suit.
I have experimented by doing all sorts of activity in it such as yoga, pilates, strength training, walking, hiking, core/balance work. I don’t find it effective to wear the suit during my floor work but I usually do find it effective during cardio. I have felt the need to keep up with additional stretching and core/balance exercises, with or without the suit, to stay in tune with my body and keep a balanced movement routine.
I’m not sure how far the suit will be able to straighten or de-rotate my spine. My double curved spine has been dwelling in the 60-degrees range for so long that going to a 40, 30, or even less of a degree still feels a bit like a pipe dream. I know there is potential for much more improvement but how many years will such a thing take if that is possible? Only time and my personal effort will tell.
If you, or someone you know is looking for a treatment for scoliosis I highly recommend researching.