Four Month Results From Wearing A Scoliosis Activity Suit

Four months in the suit and what has happened to my spine is nothing short of amazing. The results so far are what I was hoping for but truly not expecting to be possible, this is scoliosis after all.

To be very honest, I’ve been having a tough couple of weeks with my scoliosis activity suit. I really haven’t wanted to wear it, I have not been walking as much as usual, and I was even questioning if there is much benefit to using it during pilates and yoga which is all I have felt like doing.

I know that the suit is working for me but I also know that the most beneficial way to see results is to walk in it or use it during exercise that is weight bearing and standing on the legs. That being said, this week I learned that it can be worn different ways for how you are using it. For example, you can remove the tension bands during longer periods of sitting or standing and put them on for moving activity like walking, cleaning the house, gardening, dancing, etc. Learn more about the suit.

The most exciting result, besides decreased pain, is that I’ve grown taller! Today my height was measured at 5’0″ which I haven’t been since, well, maybe ever. Usually I measure around 4’11.5″ (the .5 is important!!) Now, on top of feeling more open and generally in less pain, I’ve grown taller! What this really means is that my spine has untwisted enough to significantly measure the difference. I’m so jazzed about such a positive result!

On another awesome note, I recently learned that one of my friends also got a Scoliosis Activity Suit. She is unique in that she has also had multiple spinal fusion surgeries in her teens. Her results so far are that she feels the benefits from it such as her back feels more open. How about that?! She also mentioned having a lot of fatigue when she wears it.

I totally relate to the fatigue. Working the deep spinal muscles that haven’t seen that kind of action in a long time, if ever, is exhausting. So, I guess the lesson we have learned thus far is to take it slow. Ease into wearing it at first and listen to your body when it needs rest. Know that every time you put it on it can help, even if it may seem insignificant at the time.

To date, the Scoliosis Activity Suit Experience has been a very positive one. I am so grateful to have found something that works so well!

Pam Dyer is a Holistic Health Coach who helps people with scoliosis and chronic illness to utilize natural food and lifestyle to reduce pain and create a healthier quality of life.  To request a conversation please email:  butterflysessions@gmail.com  

The Positive Sides Of Scoliosis

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Scoliosis is bleak, every single part of it. If you are somebody who is inflicted with this challenging health condition you already know that living with a twisted spine can be scary, daunting, defeating, debilitating, and lonely. I feel all of that.

Since age 12 I have been repeatedly told I need surgery and have been prescribed and given samples of pain killers, muscles relaxers, and anti-inflammatories because of my scoliotic spine. I was once told by one doctor never to hang and told by the next to hang everyday. I have spent more time than I care to count wasted in physical therapists and specialists offices who did nothing for me besides tell me to keep doing what I am doing with pilates, yoga, and as a fitness trainer. They like to tell me that my spine will get worse with each aging year, until it eventually crushes my heart and internal organs and potentially collapses on itself. Like I said, bleak.

Scoliosis is much more than just a twisted spine. It is a neuromuscular disorder that may also manifest with other health conditions such as digestive disorders, muscle spasms, depression, anxiety, migraines, etc.

I put a lot of effort into the function of my spine and have since I was a teenager because I realized at an early age that I would always have to be mindful of my special back, it was never going away. I think about how I want to move as I age and move accordingly. More than once I have completely changed my livelihood, activities, and/or my food in order to manage it holistically without surgery or prescribed medications.

One of the toughest things about scoliosis is how lonely it can be. I have a lot of energy and rarely ‘complain’ about my back pain and focus on healthy things so on the outside it looks like I am a super health nut doing just fine with my spine. People don’t see the pain or discomfort that I am generally feeling because I keep it to myself. That’s no good.

June is Scoliosis Awareness Month

What is the positive side of Scoliosis?

  1. I’ve become very in tune with my body. Pain, discomfort and constantly needing to think about standing straight or straightening your clothes will do that to a person. On another level, when I’ve tuned in with with meditation and exercise I’ve been taught by my body how to cope and move through the world.
  2. I’ve been forced to be a ‘healthy person’ to function. Living a healthy lifestyle is not an option like it seems to be for most people and it can be really tough to be the only one at the party not drinking booze or eating sugar. But hey, you’re at the party! While it is tough, living healthy is a good and positive thing to keep as a priority, always.
  3. I look at body image much differently. When I am able to embrace myself as different I am also able to let go of what I think I am supposed to be and love who I am, imperfections and all. I tend to be very grateful for all I can physically do no matter how small.
  4. My spine contributes to me being highly sensitive, empathic, and wise. I can’t explain why but it just does. Spiney senses.
  5. I’ve become a powerful warrior of chronic pain with special strengths and coping skills that makes me strong enough to handle not only my own pain but also help others handle their pains. My spine is the reason that I started teaching fitness as a teenager and the reason that I went to Institute of Integrative Nutrition in 2010, I have a deep desire to help people feel well.

I am participating in Scoliosis Awareness Month by writing this and sharing a picture of me beside an X-ray of my spine. Funny, it was much harder to post a picture of my bare back than to post a picture of my X-rays. I worked through it.

Sending out much love and double hugs to those who live with or support somebody with scoliosis.

Pam Dyer is a Holistic Health Coach who trains people with scoliosis and chronic illness how they can improve sleep, gut health, immunity, and brain function to live full and hurt less.  To book a consult with Pam please email:  butterflysessions@gmail.com